vody/> RCM - Revitalizing Community Membership: Empowering Independence: Sisters Who Weigh Just 42 Pounds Combined: Mother Reveals How Daughters, 9 and 14, with Dwarfism and Rare Condition Leaves Strangers Asking if They’re Babies

Saturday, December 19, 2015

Sisters Who Weigh Just 42 Pounds Combined: Mother Reveals How Daughters, 9 and 14, with Dwarfism and Rare Condition Leaves Strangers Asking if They’re Babies



A mother has described how her daughters weigh just three stone (42 lbs) between them despite being nine and 14, after both were born with dwarfism and a rare neurological condition.

Lola and Claire Hartley are just 5ft tall between them and are so small they are carried around in their mother's arms.
They are severely disabled, visually impaired, cannot walk or talk and suffer regular seizures.

But despite the challenges of bringing them up, their mother Gwen says they still enjoy activities typical of young girls - like listening to rap music and watching wedding programmes.

The sisters were both born with dwarfism as well as a rare neurological condition called microcephaly, which is associated with a smallness of the head and incomplete brain development.

After the eldest Claire was born, doctors told Mrs Hartley and husband Scott that she wouldn't survive past a year.

They became determined to cherish each moment with their daughter, foregoing drugs and feeding her a healthy diet, and she defied doctors to survive.

Now, despite their daughters' disabilities, Mrs Hartley, from Kansas says they bring the family great joy.

  

FOLLOW US!

No comments:

Post a Comment

twitter twi