vody/> RCM - Revitalizing Community Membership: Empowering Independence: Parents Raising Four Children with Angelman Syndrome: A Rare, Debilitating Disease with No Cure

Saturday, March 5, 2016

Parents Raising Four Children with Angelman Syndrome: A Rare, Debilitating Disease with No Cure



Cortland, Ohio - It's playdoh and iPads on a Friday night in the Jones home in Cortland.

"Every day is a whole new scenario," laughs Melissa Jones, mother.

That's because all four kids, 17-year-old Andrew, 16-year-old Christina, 15-year-old Ryan and 13-year-old Ashley have a rare genetic disease called Angelman Syndrome.

"They are happy, pleasant but they can't function in a normal environment. They are not able to take care of themselves," said Mark, father.

"I will have to take care of them for their rest of their lives," added Melissa.

Melissa and Mark say they knew they wanted a lot of kids when they got married 24 years ago.

"I had a thing, I wanted to have all the kids we were going to have by the time I turned 30," said Melissa.

They had two typical kids first, Danielle and Matt.

But their next four kids had developmental delays, did not talk, and even had seizures.
  


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