vody/> RCM - Revitalizing Community Membership: Empowering Independence: Beautiful Story: Teacher Shares Lessons in Love from Son with Rare Disability

Wednesday, May 27, 2015

Beautiful Story: Teacher Shares Lessons in Love from Son with Rare Disability



Jeff Wright stoops to lift his 92-pound son out of a wheelchair. "And up," he groans. "Oomph!"

Adam dangles from his arms, dead weight. Wright plods up the stairs in their home, carefully swinging the boy's head over a banister. "Don't want to bump your noggin," he says with a smile, cradling the helmet on Adam's head.

Wright once had dreams that his son might play football. Now Adam wears a helmet to protect him from himself. He was born with Joubert syndrome, a rare combination of genes that only about 450 people in the world have. It left him gasping for breath —180 times a minute, three times a second.

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